Montreal researchers are joining an international study to learn more about a little-understood genetic disease that…
Tag: rare disease
Pharma reform: Patients can’t afford to wait. Act now.
As EU health ministers convene for their meeting on 13 June 2023, they have been asked…
Benefits of the Substances of Human Origin (SoHO) Regulation
At the end of June, the European Parliament’s Committee on the Environment, Public Health and Food…
Rare diseases: Little known disease has big impact on patients, families and society
Discover Politico Pro In-depth reporting, data and actionable information for policy professionals – all in one…
TDT: rare disease has big impact on patients, families and society
Discover Politico Pro In-depth reporting, data and actionable information for policy professionals – all in one…
EU pharma reform: Winners and losers
If you want to understand the EU’s revision of its pharmaceutical regulations, you could do worse…
Global data is key to tackling the rise in brain health conditions
Brain health conditions have become a global health emergency. The incidence of Parkinson’s disease and dementia…
How Big Pharma games the system — and keeps drugs prices high
Press play to listen to this article Voiced by artificial intelligence. The drug market is a…
Optimizing plasma collection and donor safety
With a reliance on the US for up to 40 percent of our human blood plasma…
Advocates disappointed a year after Saskatchewan pledges to explore rare disease strategy globalnews.ca
Since telling her son Conner’s story at the Saskatchewan legislature in late 2021, Kirsten Finn has…