With a reliance on the US for up to 40 percent of our human blood plasma…
Tag: rare disease
Advocates disappointed a year after Saskatchewan pledges to explore rare disease strategy globalnews.ca
Since telling her son Conner’s story at the Saskatchewan legislature in late 2021, Kirsten Finn has…
Quebec family funds medication trial for mitochondrial disease as son fights illness – Montreal | Globalnews.ca
Have you ever heard of mitochondrial disease? The genetic condition means that the body doesn’t have…
B.C. expands children’s access to ‘transformational’ cystic fibrosis drug | Globalnews.ca
A week after a B.C. family went public with its plea for a life-changing drug for…
Ontario family seeks answers, treatment for child’s rare genetic disease | Globalnews.ca
In less than a year, the parents of an Ontario toddler said they have watched as…
Bronx father who died of rare disease cleared for potentially life-saving surgery
BRONX, New York (WABC) — A father of two from the Bronx who was repeatedly refused…
Regina Girl Fights Knee Tumor Caused by Rare Sunlight Disease. Globalnews.ca
It’s not the life Rachel Hatchie imagined her kids would be growing up, who would have…